I still have tenderness in my shoulder- it tingles when a scarf or piece of clothing is resting on it. And my whole arm turns blue with strain or when I put my weight on it (push ups, etc). But my surgeon expects that will happen for the rest of my life. There is no vein distention or swelling when this happens, just a color change that resolves within 15-20 minutes.
Please keep posting comments if you are diagnosed or know someone who is... I will continue to check in and give support where I can!
And with that... back to the regularly scheduled program :)