I haven't posted new updates in a few years because there aren't many to post! I'm still very active, am able to do all the things I love, and have not had any recurrent clots.
I do, on occasion, still get color change with extensive arm exercises or certain yoga poses. But my normal color returns as soon as I stop that exercise. I have some residual numbness in my shoulder from the surgery. There are certain shirts that rub the numb spot and cause a tingling sensation- which is annoying, but not painful. And it only happens a few times each year.
I am thankful that I found a good team of physicians the first time around, but I was also seeking information and determining the best course of treatment on my one and comparing that to the one suggested by the doctors and surgeons (my research and their recommendations aligned).
If you have Paget Schroetter's (also called Thoracic Outlet Syndrome) hang in there! It can be a long road but you'll get back on track.
I still get alerted of comments on the blog and try to reply in a timely fashion. Hope this is helpful in knowing you're not the only one!
